Working with families across the country, the Kelleher Lab is collecting information on the early development of children with rare neurogenetic syndromes. This longitudinal online survey asks families with children with Angelman syndrome, Down syndrome, Fragile X syndrome, Prader-Willi syndrome, and Williams syndrome about their child's development and their experiences as a parent.  

By partnering with nearly 400 families to date, our goal is to better understand (1) typical developmental strengths and needs of children with rare disorders and (2) early markers and pathways of risk for outcomes such as autism, anxiety, and attention problems.